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Resources for Women with Aspergers Syndrome

Comprehensive list written by ‘Kjas’ on Wrong Planet

Diagnostic Tools

These are designed for teenagers and adults.

Ritvo Autism Asperger’s Diagnostic Scale-Revised (RAADS-R)
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This needs to be filled out and scored manually. To calculate your score –
Scoring
A RAADS-R score of 65 or greater is consistent with a clinical diagnosis of ASD.
Generally they would give one to you to fill out in relation to yourself, and one to a parent to fill out in relation to you, the two should have a 95% or higher match rate to be considered accurate and reliable.

Questionnaire for Girls with Asperger’s Syndrome (QGAS)
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This needs to be filled out and scored manually. To calculate your score –
Scoring
A QGAS score of 23 or greater is consistent with a clinical diagnosis of ASD.
Generally they would give one to you to fill out in relation to yourself, and one to a parent to fill out in relation to you, the two should have a 95% or higher match rate to be considered accurate and reliable.

Eye Expression Test
Click here to access the Eye Expression Test
Your score will be calculated for you at the end of the test.
A score under 22 indicates you find this quite difficult.
Generally they would give one to you to fill out in relation to yourself which is administered by a psychologist who will carefully assess how you complete the task (particularly whether you use your intellect to eliminate options, rather than simply “reading expression”) and then score it to be considered accurate and reliable.

Diagnosis
To be diagnosed you would have to score higher than indicated on the first two, and lower than indicated on the last one. This would be combined with a childhood history from both yourself and a parent, and the observation of the assessing clinician that you display ASC traits in their presence, which is markedly more in number, consistency or intensity than would occur in the neurotypical population. Finally, they would go over the DSM IV (See: DSM IV criteria for AS ) with you in relation with the assessment to and decide which individual criteria from I to VI you met and if you agree with their decision.

Resources

These resources come recommended from specialists in the field, who specialize in AS or in women with AS, except where otherwise indicated. This is the most comprehensive list I could come up with at this time, although with the permission of moderators, it may be revised at a later date. Although many of the general are not specifically for women, they often go over common issues with AS and attempt to explain the cause and present solutions where possible.

Books

General (but still invaluable)

The Complete Guide to Asperger’s Syndrome by Tony Attwood OR Asperger’s Syndrome: A Guide for Parents and Professionals by Tony Attwood
Exploring Feelings: Cognitive Behaviour Therapy to Manage Anxiety by Tony Attwood
COPING: A survival guide for people with Asperger’s Syndrome by Marc Segar
Friends: A Practical Guide to Understanding Relationships by Helen McGrath and Hazel Edwards
Asperger Syndrome and Long-Term Relationships by Ashley Stanford
The Art of Communicating: Achieving Interpersonal Impact in Business by Bert Decker
How to Find Work That Works for People with Asperger Syndrome: The Ultimate Guide for Getting People with Asperger Syndrome into the Workplace (and Keeping Them There!) by Gail Hawkins
Asperger Syndrome and Employment: Adults Speak Out About Asperger Syndrome (Adults Speak Out about Asperger Syndrome) by Genevieve Edmonds & Luke Beardon

Women Specific (either written by women with AS or for women with AS or for their parents or partners)

Asperger’s and Girls by Tony Attwood et al.
Aspergirls by Rudy Simone (this was included because of popularity, not because it came recommended from professionals)
The Girl’s Guide to Absolutely Everything by Melissa Kirsch (not focused on AS but a guidebook, very useful for under 30’s)
Congratulations! It’s Asperger Syndrome by Jen Birch
Pretending to Be Normal: Living With Asperger’s Syndrome by Liane Holliday Willey
Finding a Different Kind of Normal: Misadventures with Asperger Syndrome by Jeanette Purkis
Women From Another Planet?: Our Lives in the Universe of Autism by Jean Kearns Miller
Life Behind Glass: A Personal Account of Autism Spectrum Disorder by Wendy Lawson
Life and Love: Positive Strategies for Autistic Adults by Zosia Zaks
Build Your Own Life: A Self-Help Guide For Individuals With Asperger Syndrome by Wendy Lawson
Safety Skills for Asperger Women by Liane Holliday Willey
Middle School – The Stuff Nobody Tells You About: A Teenage Girl with ASD Shares Her Experiences by Haley Moss
Asperger Syndrome In The Family: Redefining Normal by Liane Holliday Willey
22 Things a Woman With Asperger’s Syndrome Wants Her Partner to Know by Rudy Simone
Parenting Girls on the Spectrum by Eileen Riley-Hall (for parents)
Girls Growing Up on the Autism Spectrum by Dr. Shana Nichols et al. (for parents)
Girls Under the Umbrella of Autism Spectrum Disorders: Practical Solutions for Addressing Everyday Challenges by Lori Ernsperger & Danielle Wendel (for parents)
Ask and Tell: Self-Advocacy and Disclosure for People on the Autism Spectrum by Stephen Shore et al.
Asperger’s on the Job: Must-have Advice for People with Asperger’s or High Functioning Autism, and their Employers, Educators, and Advocates by Rudy Simone
Developing Talents: Careers for Individuals with Asperger Syndrome and High-Functioning Autism by Temple Grandin & Kate Duffy

Articles

General

Aspergers and Bullying –
http://www.mindsandhearts.net/images/stories/Strategies_to_reduce_bullying_asperger_syndrome.pdf

Aspergers and University –
http://www.aspergerfoundation.org.uk/infosheets/ya_university.pdf

Aspergers and Employment –
http://www.aspergerfoundation.org.uk/infosheets/a_employment.pdf

Women Specific

The Pattern of Abilities and Development of Girls with Asperger Syndrome by Tony Attwood –
http://www.tonyattwood.com.au/index.php?option=com_content&view=article&id=80:the-pattern-of-abilities-and-development-of-girls-with-aspergers-syndrome&catid=45:archived-resource-papers&Itemid=181

Asperger Syndrome in Women: A Different Set of Challenges? By Catherine Faherty –
http://www.autismtoday.com/articles/Aspergers_in_Women.htm

An Aspie in the City by Carlin Flora –
http://www.psychologytoday.com/articles/200611/aspie-in-the-city
http://www.psychologytoday.com/articles/200611/aspie-in-the-city?page=2
http://www.psychologytoday.com/articles/200611/aspie-in-the-city?page=3

Tables

Table of female aspergers traits –
http://www.help4aspergers.com/pb/wp_a58d4f6a/images/img244154ad237783e339.JPG

Table of many summary between female and male differences in presentation –
http://www.help4aspergers.com/pb/wp_a58d4f6a/images/img287904ad237f1d2ab3.JPG

New Additions – 10/04/13

Extra Tests

These are more intended to show in which specific areas you may experience deviation, rather than as part of the diagnostic process.

Empathy quotient
http://glennrowe.net/BaronCohen/EmpathyQuotient/EmpathyQuotient.aspx
Your score: 0
0 – 32 = low (most people with Asperger Syndrome or high-functioning autism score about 20)
33 – 52 = average (most women score about 47 and most men score about 42)
53 – 63 is above average
64 – 80 is very high
80 is maximum

Systemizing Quotient
http://glennrowe.net/BaronCohen/SystemizingQuotient/SystemizingQuotient.aspx
Scoring:
Your score: 0
0 – 19 = low
20 – 39 = average (most women score about 24 and most men score about 30)
40 – 50 = above average (most people with Asperger Syndrome or high-functioning autism score in this range)
51 – 80 is very high (three times as many people with Asperger Syndrome score in this range, compared to typical men, and almost no women score in this range)
80 is maximum

Autism Spectrum Quotient
http://glennrowe.net/BaronCohen/AutismSpectrumQuotient/AutismSpectrumQuotient.aspx
Scoring:
Your score: 0
0 – 10 = low
11 – 22 = average (most women score about 15 and most men score about 17)
23 – 31 = above average
32 – 50 is very high (most people with Asperger Syndrome or high-functioning autism score about 35)
50 is maximum

Articles

The discovery of “Aspie” Criteria –
http://www.tonyattwood.com.au/pdfs/attwood10.pdf
Is there a difference between Aspergers Syndrome and High Functioning Autism? –
http://www.tonyattwood.com.au/index.php?option=com_content&view=article&id=69:is-there-a-difference-between-aspergers-syndrome-and-high-functioning-autism&catid=44:resource-papers&Itemid=180
The Autism Epidemic – Real or Imagined? –
http://www.tonyattwood.com.au/index.php?option=com_content&view=article&id=73:the-autism-epidemic-real-or-imagined&catid=45:archived-resource-papers&Itemid=181
The Relations Problems of Adults with Aspergers Syndrome –
http://www.mindsandhearts.net/images/newsletter/April2012/The_Relationship_Problems_of_Adults_with_Aspergers_Syndrome.pdf

Books

Girl Wars
Asperger’s in Pink by Julie Clark
Reading People: How to Understand People and Predict Their Behavior – Anytime, Anyplace.by J. Dimitrius & Mazzarella
How to Start a Conversation and Make Friends by D. Gabor
Gray’s Guide to Compliments by C. Gray
Just Friends: The Role of Friendship in Our Lives by L. Rubin
Making friends: A guide to getting along with people by A. Mattews

Videos

Video on Girls with Asperger’s –
http://www.autismhangout.com/news-reports/feature-programs.asp?id2=123
Video on emotions and alexithymia in Autism –
http://www.autismsupportnetwork.com/news/video-dr-tony-attwood-autism-and-identifying-emotional-feelings-33993843
Video on Sensory Sensitivities (How we experience the world) –
http://www.youtube.com/watch?feature=player_embedded&v=plPNhooUUuc
Video on Sensory Overloads –
http://vimeo.com/52193530

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